Totally Bummed -- Any Advice?

Originally Posted By mickeynewe

Okay, so we were SUPPOSED to leave for Disneyland today, but had to cancel the trip due to medical reasons. Doctor won't clear me for vacation right now so we are looking at the end of July or first week of August.

I lost my great $54 entertainment rate at Hojos. Looking at my "normal" backup hotels I find that they are either not available, or the prices are ridiculous. Does anyone have any viable suggestions on hotels/rates, etc.?

I am soooo bummed we aren't going now. I had been looking forward to it for so long.

 

Originally Posted By kari12177

I always go to AAA. They have been really good to us about getting good rates late notice.

 

Originally Posted By I_Love_Pooh

I always use Priceline. I stay in a 3* hotel for $60 or less a night. We will be there Sunday through Wed. and I got a $47 a night rate at the Crowne Plaza. You might want to check out biddingfortravel.com.

Sorry your trip had to be postponed.

 

Originally Posted By Ursula

Email Willie at Hojos and see if he can do ANYTHING for you since it was a medical reason. If he can't he'll be really nice about it.

 

Originally Posted By mickeynewe

That is a really good idea! Thanks for the input.

I had a seizure a couple of weeks ago and so everything has been turned upside down around here for me. My best friend (4Disnee) has been awesome and has been chauffering me all around since they have temporarily taken away my license. The doc put me on some medication to keep them from re-occuring, but wants to make sure my system tolerates it before I go jaunting about on vacation.

LOL, I think the worst part about all of this is knowing that I am going to be missing our annual Disney trip, especially since we were going to be taking my daughter's best friend for the 1st time. I know the girls are disappointed, although my daughter has been the sweetest thing & extremely understanding.

Thanks again Ursula, that is a terrific idea and I'll let you know what happens!

All the best to you,

mickeynewe

 

Originally Posted By dzy76

Sorry about your medical problems and canceling your trip. Hope it all works out for you. Good luck.

 

Originally Posted By nemopoppins

A siezure just out of the blue? That would be awful having your life turned upside down just like that. But is your doctor certain that you have to wait to go? That might just be standard advice and if he knew about your Disneyland obsession (you have one don't you like most of us?) he might look closer and ascertain that Disneyland might in fact be just what you need.

 

Originally Posted By mickeynewe

Actually, I had one a few years ago --- RIGHT after returning from DL. At the time it was thought to have been caused by dehyrdration and lack of sleep. Now, come to find out epilepsy runs on the maternal side of the family. Also, I found out you can have local seizures and never even know it unless you know what to look for. Its only the big ones that we really notice. Looking back on past experiences, it explains a lot of things that has happened in the past.

Since I'm still experiencing some warning symptoms she won't let me go until it subsides and I am back to my normal self. Plus, she wants to make sure there are no allergic reactions to the medication.

Yes, you are so right nemopoppins -- I am a total Disney fanatic, so this is even more stressing.

 

Originally Posted By Tinkerbell819

The dates you are changing to are the dates I currently have booked at Hojos and the rate I have is still $109 per night. If I wait until the end of Aug. the ent. rate will probably be available. (We went that time last year but, I didn't like the parks closing early!) I check all the time for something lower, so I could keep you posted in case you're busy with doctor visits!
I hope everything is okay, I know it's just awful having to postpone your trip. At least this way, when your new date arrives, you can think that if you went in June, your trip would already be over, but now you still have your trip to DL to look forward to!
Take care of yourself!

 

Originally Posted By gottaluvdavillains

Sorry for your troubles - Try Lastminutetravel.com I got the Raddison Maingate for $72 per night including taxes and fees for the last weekend in July...Hope all goes well for you medically and disney wise....

 

Originally Posted By 8 ilovemickey 8

Sorry to hear about your medical problem and your postponement! I know its not exactly the same but my dog has seizures and I know how scary they can be. And she also gets them from exhaustion.

Hopefully you can reschedule but as much as we all LOVE Disneyland health is always more important.

 

Originally Posted By mickeynewe

Thanks everyone for being so sweet and encouraging! I should have known all my LaughingPlace counterparts would understand my disappointment and cheer me up!

 

Originally Posted By mickeynewe

P.S. Tinkerbell819 if you hear of lower rates I would love to know! In the meantime, I am anxiously awaiting a return email from Willie! The dates we are looking at now is July 27-August 1st.

The only good thing is that hubby's birthday is then so we can at least celebrate that in Disneyland! (Trying to think of the positives instead of the negatives) My daughter's birthday is also August 9th, so we can have a double birthday celebration down there!

 

Originally Posted By momof4boys

Mickeynewe- I am so sorry about your health problems and having to postpone your trip. My 8 year old son had a couple of seizures about 6 weeks ago. Very scary things to see. We leave to start our vacation ( our very first Disney Cruise) in 5 weeks. I worried the seizures would affect our vacation but luckily the medication they put him has stopped the seizures. We finally get to see the pediatric neurologist on June 18th and from what I've heard from our pediatrician and other parents, there is a good chance he might change Nathan's meds- he is on a liquid 3x a day now which is a big pain and he prefers a med that is 1x a day pill. But it kind of scares me to change his med so close to our vacation.

Thanks for mentioning that dehydration could cause seizures- we've been told about not letting him get too tired, but now I know to make sure he drinks lots of water.

I hope you have a very wonderful trip when you finally get to go. I'll be very interested to find out about the crowds when you go because those are the dates ( end of July) that we are considering going on next year.

 

Originally Posted By sherrytodd

So sorry for your troubles. I can't really help with the hotel trouble as we always stay with family when we go to DL, but I'm here with a sympathetic ear if you need it. I hope this works well for you and you're back to normal life (and DL) soon.

 

Originally Posted By mickeynewe

Momof4boys I am soooo sorry about your son! It can be scary I think more for the people that have to watch than those who go through it. Honestly, he won't even remember it too much if he hasn't been able to relay that onto you. I think the hardest part is the exhaustion that follows and it can last days. So be aware of that! The only other thing I don't like is the coming out of it. It actually feels like you are struggling for consciousness (unlike fainting where you just "come to"). I don't know if he has convulsions (I don't, I do the whole stiffening thing where it just appears as if I'm not breathing, etc.) but be sure to gently turn him on his side and then leave him alone. Try not to touch him. It is best to just try and talk to him. Your voice will resassure him and help him to come around. Although, I am sure your doctor has told you all of this. A great site for information that really helped me find out more about this is epilepsy.com. You might find it helpful to read it before visiting the neurologist.

Also if you want to email me I can give you some information on the medication I am taking. Not sure if it is viable or not for children, but my husband works for a company that makes medicine (won't name it) and their onsite doctor recommended a certain medication as one of the best out there for seizures. I didn't tell my doctor what was recommended because I wanted to see what she was recommending -- it was the same one! Unlike other medications it doesn't require monitoring of the liver & kidneys so that is REALLY good. You can email me at: myguardian2004-laughingplace dot com.

I understand your concerns about the medication. That is why we are having to wait, along with the fact I am still getting nauseated and light-headed. Another word of caution... unexplained nausea (which I have been getting for months) can be a sign of a localized seizure! So be aware of that also.

I will keep you and your family in my prayers. I know exactly what you are all going through! Best of luck to you on your Disney cruise and I will get back to you on those vacation dates! In the meantime, I mean it, my email is always open to you if you need someone to just listen, share info with, give you first hand info, etc.

 

Originally Posted By Tinkerbell819

My son, also takes medications for seizures that do not require the blood tests. He has Autism, is completely non verbal, large in stature, the blood work cannot be done unless he is knocked out! When he started the medication, he was unable to swallow pills. We were limited to something in liquid or chewable form. The meds he started with were chewable tablets, which he now takes 36 of them a day! (18 AM & 18 PM) He's been having seizures now for over 7 years. Now he is able to swallow pills and since he continues to have seizures, his meds get increased from time to time. He takes 4 of these big horse pills a day along w/the chewables. (I am afraid to change the chewables to swallow type pills b/c he also has OCD and along with the Autism, any change of routine is not taken well! I can't take any chances of him not taking his meds. Too dangerous.)
They are really scary to watch, you're so right Mickeynewe! When he finally stops seizing and starts breathing again, that's when I start breathing again, too.
Because he can't speak I don't know if he has a headache or is in any pain when it's over. He does get very tired. Depending on how bad it was or how long it lasts, he may sleep up until the next day. He had one last week and none of us were in the same room as he was. There was this really loud noise that sounded like my (other Autistic) son slamming the door, like he always does. I yelled at him for slamming the door so loud and DH is in the other room saying he didn't slam the door, here Matt fell as he was having a seizure and landed on a wooden table tray in the living room and broke it as he was falling. Boy, was it loud! Scares the you know what out of ya!
I hope you don't have any bad falls like that, Mickeynewe and Momof4boys little guy.
(Oh, and never have one while taking a bath! That's another story!)

 

Originally Posted By mickeynewe

Tinkerbell819, I am so sorry to hear your son has epilepsy as well! I will also keep your family in my thoughts and prayers. The email offer is most certainly extended to you as well if you ever need to talk!

Actually, right before the seizure I called out to my husband because I wasn't feeling well. It was 1:00 a.m. in the morning so he was asleep. He didn't here me call him, what he heard and woke up to was my head slamming the shower stall as I went down. I have never heard my husband's voice so scared in my life as when I was coming around. I felt horrible for the panic that caused him! Makes you definitely look at life differently!

 

Originally Posted By SuzieQ

Another place to try for a better price is getawaytoday.com

I'm sorry to hear about your seizure. I know you were really looking forward to this trip!

 

Originally Posted By MOLLYSMOM

Mickeynewe...I am SO very sorry about your trip, but as others have said, your health is more important.

Disneyland will always be there, and we would like for YOU to always be there, too, so take care of yourself.

I'm sending lots of Disney Magic and Fairy Dust your way.

If ya change your trip to the week of August 12th, I'll buy ya a churro and a dole whip...we'll be there until the 18th. And, if your meds allow, I've heard the Cove Bar makes a mean margarita......that's what Darkbeer told me.

I'm thinkin' happy thoughts for you.