Originally Posted By teddibubbles I am just talking my head off if you dont mind!.. I am just sad. a friend comes through town now and then for lunch... hubby and I . we invited him to come here after lunch. my house is picked up. just messy only in spots. like tons of dishes. I explanded I am feeling bad earlyer.as I have Fibromyalgia ..Hubby and him watched tv. I messed on computer.. when he left I told him I was sorry about the mess.. he said : well you feel good enf to play games! : ) I took that as you can play games yet be to lasy to clean!) I get so very fustrated at how this hits me! I feel like 75% of my time is down time! I think what I hate most is how people dont SEE my disability .. therefore asome I am faking it! little knowing that for the last few months I have been at a pain rateing of 8 1/2 to 9. teeth chatering tipe... ( its been the presure ridges changes making it happen ) LOL on the days my tylenal works like one day I cleaned the van out. cleaned the frige.. did the ton of dishes ALL! . watered all plants outside. and spring cleaned the bedroom! I LIKE to work! its like night and day the days or ( take advatage of hours of feeling better!) I feel good working! Im just so sad being judged on people NOT understanding.. so so sad! What is Fibromyalgia? <a href="http://www.fmaware.org/fminfo/brochure.htm" target="_blank">http://www.fmaware.org/fminfo/ brochure.htm</a>
Originally Posted By bloona Sounds like a great friend! Even if you thought that about someone you wouldn't say it! I hope it was only said in gest and that he didnt realise what this condition involves, hugs to you ((( ))). Next time if he says that show him where the washing up liquid is and tell him not to be so rude! How did you respond? Thanks for the link x
Originally Posted By teddibubbles I didnt.. I allways am a LONG delay person ..some times I just sit and hurt before I rellize my feelings are hurt.. and thank God.. I dont do anything.. I told him in a email..mostly sent that link... I know I hold stuff inside a just hurt alot.. but I think I try to see how God has used my hurts to form me into a better person inside.. LOL if I could only put order!! to my thoughts I mite get to be a more coopretive person for the lord TO change!.. but im pig headed to change!.. thank you for talking to me!
Originally Posted By trailsend teddibubbles ~ I also have fibromyalgia. I completely understand how you feel. It is so difficult to explain. There is incredible, debilitating pain that keeps you from even moving from one position to another, such as being seated then trying to get up. For me, if I make a sudden move, like a sneeze, the pain wracks my chest "sometimes". That's the problem. Sometimes you are fine. Other times it is hell, literally.] Teddi ~ I SO understand the fatigue you experience; how you have good days then horrible days. I'm going to email you about some research I've done to help my symptoms. Hang in there, girl. (((((teddi)))))))
Originally Posted By Kar2oonMan >>well you feel good enf to play games!<< Ugh! What a rude thing to say. >>I think what I hate most is how people dont SEE my disability .. therefore asome I am faking it!<< There are so many serious illnesses that are that way -- not obvious from outward appearances. I would say that most people wouldn't assume you are faking, Teddi. Maybe your guest meant his comment as an attempt at humor. It may shock you, but I myself have been known to make an attempt at humor now and then that didn't work. Just ask friendofdd. ; )
Originally Posted By cape cod joe I am so sorry Teddi and I had NO idea Girl hang in there and that "friend" is why I've had ONE friend in 30 years.
Originally Posted By amazedncal2 I'm sorry your feelings were hurt, he probably was being "flip" but it was rude and insensitive. A messy house is a lived in house and you have nothing to feel badly about. I met you at a mini meet in DL last July. Thank you for the link, your disease sounds very painful and frustrating. Hugs to you and trailsend too.
Originally Posted By teddibubbles Thank you for your kind letters. it is hard. the later part of my life has made me a workaholic.. I only feel good when I feel I am being productive.. so I do spend allmost all my time online!I am allways looking for a online job to do ! LOL still nothing! and I like coming here! I feel like you all are sort of my family! as we have alot in commin.
Originally Posted By LPFan22 I'm sorry your feelings were hurt, teddi. While I don't have fibromyalgia I can understand your sadness and frustration in many ways. I have kidney stone disease and like you, have good days and bad days. Yesterday was a pretty good day. I felt alright and was in a good mood. Today is not so good and I'm moving pretty slow so my spirits are dampened. It won't keep me down though. Tomorrow is another day! It sounds like your friend was trying to joke with you. At the same time I would have felt bad too. It's hard being a sensitive person. I hope you feel better about things soon. You have a lot of support from your fellow LPers. =)
Originally Posted By LilliBelle teddi, I'm so sorry what he said made you sad. I understand what you mean about having a disease that people can't see. I have Lupus and like you, some days are great and other days are just a struggle to get out of bed. I think he was just trying to joke with you, but it came off badly. Hang in there, sweetie. Do you have a good doctor that you see regularly?
Originally Posted By JazzCat teddibubbles, I have another very dear friend who has Fibromyalgia and I understand how much it hurts. He is probably very ignorant of your disease and needs to be educated about it. Perhaps you could send him the link you posted about the effects.
Originally Posted By teddibubbles yes I have a doctor but he could care less i think.. but then again I get imune to meds.. so I just mix days on diferant stuff! I have one that is helping some.. but I wait untill I am at 8 1/2 in pain before even thinking on taking a pill.. LOL one time I had a HUGE HUGE fight with my doctor!! and he was mad I was mad! he wanted to put me on depression pills becuse I WAS!! thinking bad thoughts... but he wouldnt give me pain pills! ( I was at like 9 in pain for weeks ) thus I couldnt take anymore! .. So I FINALY went in with hubby for sapport and Doc and be went at it! he was mad saying I needed depression meds and I refused! I told him a few choice words.. and said Docs are stuped! its like DAH! Im in (((( PAIN!!!)) anyone would want to end it if they cant stand the pain!! SO GIVE ME MEDS FOR PAIN !! then I WONT be depressed! GRRRRRRRR! he did give them to me! but what was funny.. the first day on the pills LOLOLOL man THEY WAS GOOD!!! LOL I thought oh boy did I find a Good thing! I was stoned LOL .. but the next day I was very sick from them ( alergy) and thought nowonder yesterday was a rell buzz.. it was reaction... so back to over counter stuff or wine. keep hopeing to find just a norm for me!.. sometimes I just go to riverside.. it is a differant elavation.. I mostly feel better there and doing so lose fat..but this last trip was no chage becuse of winter storms there!.. so here me is!
Originally Posted By smedley Sending my sympathies too teddi, I really hope this chap was tryig to jest with you, let's hope seeing the link will help him to understand the pain you are suffering.
Originally Posted By CrouchingTigger Gee, teddi, my wife has FM as well. (The main reason we haven't been to Disneyland for a few years.) She gets really frustrated for the same reasons. There's no outward sign of a problem, and some doctors still deny that the condition actually exists even though it's recognized by the Board of Rheumatology. People tend not to understand when we make dates and then have to break them off because she wakes up with a bad day. She is also reacts badly to just about any medication. All we can do is try to take advantage of the good days, and try to make the bad days go by as quickly as possible. Video games can be a good way of making those bad days pass, and recent research indicates that the level of concentration required to play a realtime game (like Pong, or a driving simulator), is actually good for helping to control the pain. I duped my wife into spending about 45 minutes playing with me on the X-Box (Crimson Skies), flying a plane. At the end she asked "why were you so eager for me to play anyhow?" I asked her "How much pain have you felt for the last hour?" All of a sudden a look of amazement came over her face, and she said "None!" So use those video games as therapy, teddi, and get exercise when you can. The exercise is something my wife has started to do this year and it's helping - ever so slowly, but it's helping.
Originally Posted By teddibubbles Yes I agree I am here.. or on pogo playing Rainy Day Spider Solitaire in 40s... and in 8 Legs and a Duffel Bag .. room.. I go there ALL day and night! Its comforting to me the rain sound.. if you LP ers ever want to join me I think you will be hooked! it does make me forget my pain alot!............ I am happy you guys are talking to me THANK YOU
Originally Posted By beamerdog Hi teddi - Don't you just want to kick people who are clueless? Argh. Well, t, you know my story. I had a man ask me in the nastiest way the other day, "Why do YOU need a service dog?" Or the woman who asked "So, just what's wrong with you?" Some people are just so incredibly insensitive and rude. Just because you look good on the outside has absolutely nothing to do with how you feel on the inside. It's a wonderful tribute to you that people can't tell the incredible pain you must be in. You are so strong even though you think you're not. You are a huge positive example to many of us on LP and I hope you spend lots of time on your computer posting here!! Just remember for every boor and nincompoop (sp?) there is out there, there is another caring person to help you along your way :-D
Originally Posted By DVC_dad Okay, two things. Warning: They may offend you but I HONESTLY have the highest intentions. 1.) If you are unhappy with your doctor, go to another doctor. It is never good to argue with your doctor. He feels just as bad as you do, not being able to help you as he wishes he could I would bet. Also, it is possible that behavoral meds isn't his cup of tea and he may not even know where to start with that sort of therapy. He isn't the enemy, your condition is, but that doesn't mean he is what is best for you either. 2.) Dishes in a pile...hummm...I expect you are going to say your hubby works hard all day and needs to recoup at night and what not, but in this life sometimes you gotta do what you gotta go...does your husband ever think that taking 15 minutes to clear the sink would actually be a huge help to you? When my wife is pregnant, which is pretty much all the time (5 kids, will be 6 in May) I don't allow her to do ANY housework at ALL. I do ALL the cooking, cleaning, clothes washing,folding,put away'ing, kids lunches for school, baths, doc visits for kids, toilet cleaning you name it. Anyway, I hope I didn't offend you or anyone else. The friend who said that to you about the dishes isn't much of a friend.
Originally Posted By DVC_dad Now as I reread my post it seems to have a slight edge on it that I didn't intend it to have. I apologize if it is well not writen the way I meant for it to be. It almost sounds like I am coming down on your husband and tooting MY horn about myself, but I honestly didn't mean it that way. Just maybe he should help you out more is all I was suggesting, but for all I know he has all he can handle with his job.
